Date lodged: 17 April 2019
To ask the Scottish Government what the mortality rate is for people with mucopolysaccharidosis (MPS), and which NHS boards routinely provide this information when consulting patients regarding bone marrow transplant procedures.
Answered by: Jeane Freeman 14 May 2019
Scottish Government does not hold this information centrally. NHS Boards and healthcare professionals locally have responsibility for service delivery and patient treatment. For this reason NHS Greater Glasgow & Clyde Board would be best placed to provide this information. The contact details can be found online at https://www.nhsggc.org.uk/.