Date lodged: 14 January 2019
To ask the Scottish Government what steps it is taking to raise awareness of (a) progressive supranuclear palsy and (b) corticobasal degeneration.
Answered by: Joe FitzPatrick 23 January 2019
We are currently in discussions with a third sector organisation to agree how we can support work aimed at raising awareness of these conditions in Scotland.
In a broader sense, we recognise that progressive supranuclear palsy and corticobasal degeneration are distressing, life limiting rare neurological conditions. In 2014, the Scottish Government published its Implementation Plan ‘It’s Not Rare to Have a Rare Disease’. In February 2018, we published a report providing an update on this and the work being carried out in Scotland against the 51 Commitments in the UK Strategy for Rare Diseases.
Further to this we have developed a draft National Action Plan on Neurological Conditions, which is currently open for public consultation until 8 February 2019. This five year plan sets out a vision for driving improvement in the care, treatment and support available to people living with neurological conditions – and their carers - in Scotland.