Date lodged: 19 June 2018
To ask the Scottish Government what plans it has to reconvene the stakeholder working group on appropriate hospice and respite provision for young disabled adults.
Answered by: Joe FitzPatrick 10 July 2018
This is not a working group that the Scottish Government has chaired in the past.
In response to Petition PE1499, Children’s Hospices Across Scotland (CHAS) worked with relevant stakeholders, including the Scottish Government, to address concerns around the introduction of an upper age limit at their hospices for babies, children and young people with life limiting conditions. As a result, a dedicated Transition team was set up in 2014 for a three year period to support these young people approaching the end of their stay at CHAS.
The Transition team continues to operate through the core CHAS service and works with the young people currently using the service to help maximise their future opportunities for independence, and identify age-appropriate options available to them
The Health and Sport Committee considered Petition PE1499 further on 2 February 2017 and welcomed the work that CHAS and the Scottish Government had undertaken to look at how respite services for young adults can be improved and increased. The Petition was closed as it was agreed that action is under way to address the matters raised.