Date lodged: 13 November 2017
To ask the Scottish Government what plans it has to improve access to clinical nurse specialists in myeloproliferative neoplasms.
Answered by: Shona Robison 27 November 2017
We are working together with partners to improve the outcomes and support for people with rare diseases as outlined in the Implementation Plan 'It's Not Rare to Have a Rare Disease'. The Scottish Government cancer strategy 'Beating Cancer: Ambition and Action' complements the actions of the rare disease plan through its focus on early detection, diagnosis and treatment for all forms of cancer, including rare cancers.
I recognise the vital role specialist nurses play in patient care. That is why we are investing £2.5 million annually in specialist nursing and care.
I expect all NHS Boards to ensure that patients with conditions such as myeloproliferative neoplasms have appropriate access to a range of professionals, including specialist nurses, to ensure optimum management of their condition.