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Parliamentary debates and questions

S5W-10191: Alex Cole-Hamilton (Edinburgh Western)

Scottish Liberal Democrats

Date lodged: 6 July 2017

To ask the Scottish Government what consideration it will give to consulting toward the drafting of a cystic fibrosis treatment strategy for Scotland and the appointment of a national clinical lead to ensure access to uniformly high standards of care across Scotland.

Answered by: Aileen Campbell 26 July 2017

People living with cystic fibrosis can access a range of appropriate services via their local NHS Boards, Integrated Joint Boards and a national service. Specialist services for people with cystic fibrosis are delivered via the nationally designated service across 3 specialist centres around the country – in Aberdeen, Glasgow and Edinburgh. There is also an outreach service in Dundee. The national service shares treatment protocols and guidelines in order to maintain high standards of care across Scotland.

Additionally, there is a National Managed Clinical Network for paediatric cystic fibrosis with well-established transition into adult services.