Date lodged: 22 February 2017
To ask the Scottish Government what action it is taking to raise awareness of dystonia.
Answered by: Aileen Campbell 7 March 2017
NHSScotland has invested in online resources such as the NHSinform website, which provides clear and accessible information on the causes, symptoms and diagnosis of dystonia. This can be accessed at the following link:
In 2014-15, grant funding provided to the Dystonia Society was aimed at running workshops to disseminate the Society’s self management course, which supports people living with dystonia to self manage the condition and play a more active role in discussions with health and social care professionals about their care.
The Dystonia Society is a member of the Neurological Alliance of Scotland (NAoS), which aims to raise awareness of all neurological conditions. The NAoS also retain membership of - and are key partners in - our National Advisory Committee for Neurological Conditions which is working to drive improvement in outcomes for people with a range of neurological conditions.