Date lodged: 7 October 2016
To ask the Scottish Government what discussions it has had with (a) JDRF, (b) Diabetes Scotland and (c) academics about bio-banking data from all new Type 1 diabetes cases to aid medical research.
Answered by: Shona Robison 4 November 2016
Officials from the Scottish Government met with representatives from JDRF on 28 June 2016 to discuss areas of mutual interest, including possible collaborative research. Contact between the Scottish Government Chief Scientist Office and JDRF is on-going.
The Scottish Government Chief Scientist Office is the co-funding partner with Diabetes UK (Diabetes Scotland's parent organisation) of the Scottish Diabetes Research Network Type-1 Bioresource. Over 6100 Type 1 patients consented to take part in the study, thereby creating the largest bio-bank of Type 1 Diabetes adults in Europe with blood, urine and DNA available for further study.
The Chief Scientist Office is represented on the Type-1 Bioresource executive steering committee and participates in discussions with academics on how to maximise the outputs of the study. The role of CSO as a research funder is well-known among the Scottish Diabetes research community. CSO would welcome discussions on potential further Type 1 Diabetes bio-banking initiatives.