Date lodged: 1 August 2016
To ask the Scottish Government when the next meeting of its stakeholder review group on appropriate hospice and respite facilities for young disabled adults is taking place.
Answered by: Shona Robison 24 August 2016
The group which met in response to Petition PE1499: ‘Creating Suitable Respite Services for Younger Disabled Adults with Life-Limiting Conditions’ agreed that the immediate focus for this group would be the young adults over the age of 21 who are currently using Children’s Hospice Association Scotland (CHAS) services.
The medium to longer term focus was to generate a range of options that could meet a wider range of needs. To this end the CHAS transition team continues to explore with young disabled adults and others the potential for further collaborative projects which could enable young adults with life limiting conditions to have short breaks outwith a hospice environment.
More recently, as part of the Health and Sport Committee’s inquiry, ‘We need to talk about Palliative Care’ and in the Strategic Framework for Action on Palliative and End of Life Care, I am considering how this area of work can continue to be taken forward.
I will ensure that the relevant interests involved in the stakeholder review group continue to be involved in wider considerations.